Myelofibrosis education by leading researchers, doctors, and patients.
Explore stories, videos, and articles about MF symptoms, diagnosis, medical research, and hope.
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Article
MF Mutations or Musical Chairs?
Mutations & Pathways
The many mutational changes in MF add to the disease's ever-changing complexity
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Episode 1: Know Your Myelofibrosis
Dr Gerds
Splenomegaly
Cytopenia
See Dr Gerds break down what it means to have MF with animated concepts, important definitions, and why it's complex
Video
Episode 2: Know Your Mutations
Dr Savona
Transfusions
Thrombocytopenia
Co-Treatment
Dr Michael Savona discusses myelofibrosis symptoms, mutations and how they can operate like a traffic jam
Video
Episode 3: Know Your Blood Counts
Dr Mesa
Transfusions
Thrombocytopenia
Co-Treatment
Dr. Mesa shares how your blood counts change your disease and treatment
Story
What's on Dr V's Mind Today?
Dr Verstovsek
Thrombocytopenia
He’s a global leader in myeloproliferative neoplasms. Now hear Dr V’s thoughts on MPN history, progress, hope, and the future.
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Story
How Spleen Size Affects Overall Health
Dr Verstovsek
Splenomegaly
Dr Verstovsek explains why a small spleen is so important for patients
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Guarding Against Thrombocytopenia
Dr Verstovsek
Thrombocytopenia
Why cytopenic MF patients and their doctors must always monitor platelet count
Video
Myelofibrosis Medications are Real (and Growing)
Dr Verstovsek
Co-Treatment
Once only wishful thinking, newly-created MF medications provide hope and options for patients
Story
Partnering with Local Hematologists-Oncologists
Dr Verstovsek
Co-Treatment
Dr Verstovsek calls local hematologist-oncologists heroes, as he explains why collaborating with them is so important
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Cytopenic Patients and the Importance of Dosing
Dr Verstovsek
Latest Research
How dosing affects MF patients dealing with splenomegaly, enlarged liver, and quality of life
Story
Transplant Candidates Benefit from New Drugs
Dr Verstovsek
Latest Research
Patients now have drug options, like JAK inhibitors, to prepare them for hematopoietic stem cell transplant
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One-on-One: Dr Savona and His Patient, Cindy
Dr Savona
Patients’ Perspectives
Cindy’s MF journey, from diagnosis to transplant
Video
Conducting Myelofibrosis Research in Music City
Dr Savona
Mutations & Pathways
Latest Research
A handful of mutations, like a dozen notes in music, creates many different possibilities in myeloid disease
Story
12 Notes of Myelofibrosis
Dr Savona
Mutations & Pathways
Latest Research
Dr Savona sees a bright future for myelofibrosis research
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Article
Navigating SVR Cytopenic MF Patients
Reducing spleen size without exacerbating cytopenias has been a critical need
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The Myelofibrosis Exam Table Drawing
Kathryn Johnson
Kathryn Johnson, DNP uses exam table paper to communicate to patients what is going on with their MF and their treatment
Story
HCP Insight to Help Plan Myelofibrosis Care
Kathryn Johnson
Symptoms of MF
Inflammation
Kathryn Johnson, DNP explains how patient conversations reveal clues that guide treatment
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Article
Inflammation in MF: The Chicken or the Egg?
Symptoms of MF
Inflammation
Experts look at inflammation as a potential cause of myelofibrosis
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One-on-One: Dr Angela Fleischman and Her Patient, Bradley
Dr Fleischman
Inflammation
Mutations & Pathways
Patients’ Perspectives
Splenomegaly
Cytopenia
Real talk about symptoms, diagnosis, inflammation, blood cell counts, spleen size, and more
Story
Where is Inflammation Hiding in MF
Dr Fleischman
Mutations & Pathways
Symptoms of MF
Inflammation
Dr Fleischman takes us below the surface of symptoms to locate inflammation
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An MF Doctor Shares Connection with His Patients
Dr Scott
Latest Research
Patients’ Perspectives
Bart Scott, MD explains how surviving cancer empowers him to treat myelofibrosis patients
Story
Doctors Collaborating to Treat Myelofibrosis
Dr Scott
Co-Treatment
Latest Research
Together with hematologists-oncologists worldwide, Dr Scott supports comprehensive care for 300 MF patients annually
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Myelofibrosis Overview: Challenges Now and Future Hope
Dr Gerds
Mutations & Pathways
Splenomegaly
Symptoms of MF
Anemia
Thrombocytopenia
Cytopenia
Patients’ Perspectives
Latest Research
Aaron Gerds, MD explains his 5 big questions in MF
Story
Exploring the Biggest Questions in Myelofibrosis
Dr Gerds
Splenomegaly
Cytopenia
Anemia
Thrombocytopenia
Inflammation
Symptoms of MF
Mutations & Pathways
Latest Research
Aaron Gerds, MD reveals why he never stops searching for better answers for people living with MF
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One-on-One: Dr Mascarenhas and His Patient, Gail
Dr Mascarenhas
Cytopenia
Patients’ Perspectives
Transfusions
Doctor and patient discuss what myelofibrosis patients can expect
Video
Dr Mascarenhas Looks at the Future of Myelofibrosis
Dr Mascarenhas
Mutations & Pathways
Cytopenia
Patients’ Perspectives
Latest Research
A preview of where MF breakthroughs can happen as research grows
Story
What’s Next in Myelofibrosis
Dr Mascarenhas
Cytopenic MF
Mutations & Pathways
John Mascarenhas, MD shares his latest insights: potential drivers, pathways, and possible solutions
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